Families & Stories
Over the years Family forever have helped families. Here are a few of their stories below
Harrison & Family
Harrison was diagnosed with lymphoblastic lymphoma
Welcome the Stainton Family
Harrison's journey
Harrison is 11years old and currently in maintenance treatment for T-cell lymphoblastic lymphoma. End of treatment is 28 March 2026!
Harrison was diagnosed on 1 December 2022, I initially thought he was constipated. After several trips to the doctors, a referral to our local hospital they found his left lung was filled with fluid. He was rushed into surgery for a chest drain. After a week in two different ICUs I was given his cancer diagnosis. Then became the endless rounds of chemotherapy, 6 months of intensive treatment.
Harrison developed several bloods clots at each of his central line placements, the most serious one in his right leg making him unable to walk. Harrison was too unwell from his treatment, the blood clots and various side effects to make it to school for more than a few hours a week during his first year of treatment. As treatment progressed and his blood clots dispersed he was able to tolerate home tutoring and a few more hours a week at school. After 18months of treatment Harrison was able to walk back into school and attend his final year at primary school full time. He’s really looking forward to starting secondary school in a few weeks time.
We both find it hard to believe how far we’ve come and the end or treatment is almost in touching distance. Harrison’s most looking forward to a 3 day party! One for each year of treatment he’s had to endure
Lilly & Family
Lilly was diagnosed with Crouzon syndrome
Welcome lily and family
Hope lily has lots of fun with mum & dad
Lily’s journey
In October 2023, our brave Lily was diagnosed with Crouzon syndrome. On her very first birthday, she faced her first surgery — the beginning of a journey that has already included four operations on her skull.
Her most recent procedure, just a few months ago, was called a posture distractor surgery, where expansion rods were carefully placed to gently separate her skull and give her growing brain the space it needs.
Lily is recovering well, showing the same courage and determination she always has, though it hasn’t been easy for her to settle back into everyday life. That’s why we are so deeply grateful for this holiday — a chance for new scenery, a breath of fresh air, and hopefully, a reset for the rest of the year
Ciara and Deborah
Acute lymphoblastic leukemia
Welcome Ciara and Deborah
Hope Ciara has lots of fun with her mum
Ciara journey
Ciara was born with Down Sydrome, needed a heart operation at 18 months and had various hospital stays in infancy but by reception year in school she was doing well and keeping up with her peers. However after just stating year 1 she started limping and progressivly getting worse.
All sorts of invasive procedures took place but it was two months before she was diagnosed with acute lymphoblastic leukemia. She was put on the high risk of relapse treatment protocol, which lasted almost threee years and due to her other health complications she had long streches in hosptial, PICU and missed most of school.
Covid Lockdown coincided with her return so actually Ciara never returned to primary school, had no peers and no sibling so it was a very solitary childhood. She now attends a secondary special school and suffers some long term side effects from taking chemo and steroids for so long. Her most recent health challnge is a regrowing cholesteatoma which means more operations and deafness. She is looking forward to the little holiday with Mum.
Mattie & Family
Mattie was sadly diagnosed with a Glioblastoma tumour (Brain cancer).
Family forever arranged for Mattie and his family to have a weekend at new Romney holiday park, where they could relax and spend time with each other.
Mattie loved watching his brother Szymon in the swimming pool with one of his favourite days being the train ride from Romney sands to Hythe. He loved his ice cream and was never seen without his flag!
Mattie's mum Joanna left some kinds words for Family forever on our facebook page.
Mattie is currently responding well to treatment.
Gabriela & Family
Gabriela was born with Hypoplastic left heart syndrome
Gabriela and her family had a holiday at Romney sands with plenty of activities, It was their first ever family holiday!
From making slime to dyeing T-shirts their favourite part of the holiday was the fish and chips!
Gabriela really is a special little girl she has had 3 open heart surgeries and several cardiac catheterisations and yet still remains so cheerful, happy and polite.
Gabriela is currently still under treatment and doing well.
Mara & Family
Mara has an extremely rare neurological genetic disorder (GABBR2gene mutation)
A message from Natasha, Maras mum.
We cannot thank family forever enough for their generosity and support, our little girl Mara's Journey has been gifted an amazing swing by them, Mara has an extremely rare genetic disorder, we only know of four in the UK with the same.
Maras favourite thing is swinging! Now she can enjoy it with her brothers! What a fab swing it is!! She’s very excited and has been on it every day since!! Thank you so so much we are “forever” grateful xxx
Krisiya & family
krisiya was diagnosed with ATRT which is a rare-grade brain tumour
Krisiya and her mum Tonka spent some quality time together at our caravan in Romney sands, where Krisiya had fun completing activities and driving the peddle cars!
Krisiya is currently receiving treatment as is responding well. everyone at Family forever wishes you all the best for the future.
Oli & Lou
Family forever set up a date night
Family forever set up a date night for Oli & Lou with lots of home made food and treats. Fun times and the arcade we wish Oli and his family the best for the future